Quilting with disabilities

[Julia L.]

My aunt had Sjogren's syndrome.It is often associated with illnesses like Lupus or arthritis,the kind of illnesses where the body attacks itself.The main symptoms are dry mouth and eyes,my aunt had to use fake tears and saliva,not pleasant, I hope you don't have it. Feel better soon. Julie

[Julia L.]

Hi everyone, I just thought I would give a quick update on everything that has happened over the past 2 weeks with the Drs. and ins. First of all since the accident I have been given more diagnosis and meds then I care to mention. Well today I got test results back that gave me answers. The good news is we have ruled out Lupus, Sjogren's syndrome, rhumetoid arthritis, Lymes disease and a few others. This Dr has also confirmed that Yes I do have Fibro. Many have thought this but did not want to officially diagnose this or treat it. This Dr. is angry that I was not sent to him sooner. He stated that he should have been the type of Dr. they should have been working with right along. Especially since the pain kept getting worse. So now we are increasing my meds. However the ins. still won't pay for the one med so the pharmacy won't give me any of them. :twisted: Yep the agent says she has to work on her mail as it is dated and she is working on mail dated June 23. So the frustration continues.
Rachel

[Julia L.]

May the fleas of a thousand camels infest "the agent's" armpits, Rachel......

I hope you feel better soon. Have you considered giving "Sea Buckthorn" a try, for your fibro? Google it. It's very interesting....

neen

[Patti P.]

There was also somewhere on the forum a discussion that Mucinex relieved sone folks' pain

[Patti P.]

:shock: I like the idea of the fleas and the armpits :!: :lol: if only I was a vicious person. Remind me to stay on your good side No I never heard of Seabuckthorne but I will look it up. I did explain to my Dr. my ins. dilema and he told me what to do withthe meds I had and gave me more of those to get me through the next couple weeks. This way hopefully the ins. situation will get straighten out. I talked to my lawyer and he said we will be setting down with bus co. in August. Thank the Lord. :!: :!: :!: Hopefully The big guy is still working for me up there. Which I am sure he is and I know because of that all will be well. Slow and steady stay the course. Right? Rachel

[Patti P.]

I've been having relief of symptoms with the Mucinex, but it's important to know that I have to stay strictly away from any product containing salicylates.

Pat in Rockport, TX

[Eileen K.]

I'm going back to PT. The pain doctor included the tendonitis in both elbows into the prescription because I told her I can't afford to pay for PT outside of the WC. She's saying the elbow thing has nothing to do with my injury or my fibro.
But the RSD can affect joints as well as skin and muscle. So, my opinion is that it is all part of my injury history.
My attorney is going for permanence instead of a settlement. That way I can keep my medical benefits.
The doctor had to write a letter saying whether she thinks I'm permanently disabled. Well, she did and in it she included my depression and said that she thinks I should have psychotherapy. Just writing this is making me tear up. I think I've been using you all as my therapy. I don't want to stop. DD read the letter and agrees with the doctor. DH thinks all I have to do is some exercise and everything will be okay. How can I tell him that now I may also have to see a therapist?
I'm at a standstill here. I don't know what to do. I think I'm going to have to wait until after we have the next hearing.
Thank you to all of you for being here for all of us that need to vent or just whine. I've found that you all mean so much to me, even though we've never met face to face.
Eileen

[Patti P.]

{{{{{{{{{{{{{Eileen}}}}}}}}}}}}

[Patti P.]

Eileen I feel like I should get a family discount on therapists! I never would have thought it-- sounds so "hollywood"-- but I got into a BAD depression & (along w/ meds) a therapist really helped me out of it, and has helped DH & my boys as well... give it a shot & you might find it's ok... Hugs, Florence

[Patti P.]

Oh Eileen I wish I could just reach right through the computer and give you the hug you desperately need. Consider yourself hugged from a distance and know you are always welcome to use us as "therepy" whenever you need.

[Patti P.]

Eileen, Remember so many of us are here for you. You have been such a rock for me and if I can help just know I here in Southern NY. At least I am in the same state. I wish I was closer and that gas was cheaper. I would be there tonight. We could be each other therapist. Either that or we could down a good bottle of wine and enjoy it's numbing effects. Now I never drink so I am sure that one glass would probably do it. :mrgreen: Remember we love ya and are praying for you Rachel

[Eileen K.]

Thanks, ladies. I didn't write that to have a pity party. I'm such a stream of consciousness person, it all just came out.
I'm waiting to hear back from Frances about biofeedback and I'm plugging along on my quilts.
Our show is in September and the cutoff for entries is August 4th. I have to get going on my quilts as well as customers'. It's hard scheduling time for my own stuff. I run out of spoons.
Eileen

[Eileen K.]

I hear you. I think that is why I keep starting more and more projects. If I stay focused on those I don't focus on the pain. There for I refus to let it win. Now if I could only get the lawyers and dr.'s and ins. co's to focus on me. I would be doing great. :wink: Rachel

[Patti P.]

I'm doing a cautious happy dance. I had my 3rd shot yesterday and so far I've been able to sit up in an upholstered chair for 2 hrs. I am just about to test sitting at the sewing machine and have fingers so crossed I may have to pry them loose to work the machine! Hoping as the weekend progresses to test sitting up enough to go back to work at least part time. Yippee (I hope!)

[Patti P.]

Yea!!!! you can cross your fingers... oops I mean sit up in a chair :lol: :lol: :lol: Sorry one of my MOM's jokes. right after the accident my hands were the only thing that didn't hurt so she bought me a cake and had thank God your fingers are ok put on it. She's weird. But she is mine. :? Listen take it slow and easy as if fast and careless was an option right now. I will continue to pray for you Rachel