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Rob Appell, Alex Anderson and Jenny Doan. RARE Science Stuff and Stitch Houston Quilt Festival 2017.
Image courtesy of RARE Science.

Nothing says fun like gathering together with fellow quilters as we all try to stuff and stitch up 200 RARE Bears that will bring joy to kids with rare diseases. Soft and cuddly for the kids, these hand made bears also unite families around the world as a first step in understanding how we can develop medicines for these special kids.

Meet or make a new friend in The RARE Science Booth (#115) at Quilt Festival Houston. Each and every day, you can sit a spell, chat while you stuff or stitch...and maybe even meet a supporting celebrity or two.

Did you know?

  • The RARE Bear Army of skin makers (unstuffed bears) is 5000 strong across 15 countries. 
  • The outreach to children is now across 50 countries and over 1000 rare diseases. 
  • Collectively there are 200 million children in the world that have a rare disease - you can help bring awareness, joy to kids, support to families and help drive creation of more effective medicines.  

 

Want to know more about how the RARE Bear Army makes a difference?

 


Comments   
#3 Tomey 2018-11-05 11:11
I spend time in the adult chemo clinic alternate weeks! My daughter is on her second colon cancer! Reaching out with other patients she writes encouraging sayings on rocks she shares with grateful patients! Adults also have the need for comfort items! When creating also think of this population!
#2 Kate B 2018-11-04 19:22
I've made about 60 RareBear skins. This video is from our own King 5 Evening TV show here in Seattle!
#1 LaLoBa 2018-11-03 08:30
I had not heard of this organization. My granddaughter has a 1 in 5.5 million desease. I will definitely follow and support them.
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